Saturday, April 9, 2011

I am a mother of a son with fragile x.  I have known this since November.  Randy has known as long as me.  Why is it that he is still in denial???  I'm not sure how much longer I can handle the denial.  Next month we go to Indy to  see Nate's doctor I hope randy snaps out of this. 

Today Randy went to his moms and when he left he took my truck keys also.  Nate wanted to go and see dad.  We were getting ready when I realized we had no keys.  O my.  The meltdown started.  I tried to explain to Nate the dad had our keys so we couldn't go.  Nate just cried and had a fit like no other.  I tried to put his focus on other stuff.  It was just not working. I finally got a hold of randy. (hour later) He came home and brought us the keys.  When Nate seen dad driving in to the drive.  That boys eyes just let up.  Nate went yelling for dad and asked for the keys.  It was so cute.   

Sorry I had to vent.  I hope everyone has a good day:)

Friday, April 1, 2011

Hopes and Dreams

  For years I beat myself up wondering what I did wrong when I was pregnant.  What did I do that caused all these delayment.  Was it because I drank coffee?  Was it because I was around second hand smoke?  Then I got the call from the doctor telling me that Nate had Fragile X.  I was not sure if I was happy that I had answer or mad because I did give him this.  The past six months I have done a lot of soul searching. 
  As a parent we have all these BIG hopes and dreams for our children.  I do!!   When I first found out Nate had fx, the first questions I had was "what does his future hold".  Will he be able to live on his own?  Will he be able to handle school and college?  What about a job and drive a car?  I know only the future will tell.  What I do know I need to be as positive as I can be.  
   Nate loves school.  He knows all the kids names in his class.  He even has a crush on his teacher.  (Its so cute)  Nate counted backward from 5 to 1 the other day.  I was so proud of him.  He did it all on his own.  I know down the road he will have hurdles.  I hope as a mom that I can give him the confidence for him to jump over those hurdles.  My hopes and dreams are still there.  My goals for him are day by day goals. 
  I am blessed that I have a wonderful little boy.  The days where I'm stressed all I have to do is look at his smile.  My heart melts.  I pray each day that the big mean world won't be mean to my wonderful little boy.  
I hope everyone  has a good day:)